The Hungarian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)

For the Paediatric Rheumatology International Trials Organisation (PRINTO)

Research output: Contribution to journalArticle

Abstract

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Hungarian language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations, test–retest reliability, and construct validity (convergent and discriminant validity). A total of 206 JIA patients (3.9% systemic, 41.3% oligoarticular, 28.2% RF-negative polyarthritis, 26.6% other categories) and 90 healthy children, were enrolled in two centres. The JAMAR components discriminated healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Hungarian version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.

Original languageEnglish
Pages (from-to)243-250
Number of pages8
JournalRheumatology International
Volume38
DOIs
Publication statusPublished - Apr 1 2018

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Juvenile Arthritis
Psychometrics
Parents
Reproducibility of Results
Arthritis
Reading
Healthy Volunteers

Keywords

  • Disease status
  • Functional ability
  • Health-related quality of life
  • JAMAR
  • Juvenile idiopathic arthritis

ASJC Scopus subject areas

  • Rheumatology
  • Immunology and Allergy
  • Immunology

Cite this

The Hungarian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR). / For the Paediatric Rheumatology International Trials Organisation (PRINTO).

In: Rheumatology International, Vol. 38, 01.04.2018, p. 243-250.

Research output: Contribution to journalArticle

For the Paediatric Rheumatology International Trials Organisation (PRINTO) 2018, 'The Hungarian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)', Rheumatology International, vol. 38, pp. 243-250. https://doi.org/10.1007/s00296-018-3955-y
For the Paediatric Rheumatology International Trials Organisation (PRINTO). / The Hungarian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR). In: Rheumatology International. 2018 ; Vol. 38. pp. 243-250.
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abstract = "The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Hungarian language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations, test–retest reliability, and construct validity (convergent and discriminant validity). A total of 206 JIA patients (3.9{\%} systemic, 41.3{\%} oligoarticular, 28.2{\%} RF-negative polyarthritis, 26.6{\%} other categories) and 90 healthy children, were enrolled in two centres. The JAMAR components discriminated healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Hungarian version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.",
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AU - Constantin, T.

AU - Dérfalvi, Beáta

AU - Sevcic, Krisztina

AU - Garan, Diána

AU - Káposzta, Rita

AU - Poór, G.

AU - Kiss, E.

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AU - Consolaro, Alessandro

AU - Bovis, Francesca

AU - Ruperto, Nicolino

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AB - The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Hungarian language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations, test–retest reliability, and construct validity (convergent and discriminant validity). A total of 206 JIA patients (3.9% systemic, 41.3% oligoarticular, 28.2% RF-negative polyarthritis, 26.6% other categories) and 90 healthy children, were enrolled in two centres. The JAMAR components discriminated healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Hungarian version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.

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