The Hungarian HAE experience

Research output: Contribution to journalArticle

16 Citations (Scopus)

Abstract

The Hungarian HAE Center was established in 1994, in Budapest. Assignments of the Center include diagnostic work-up of patients with angioedema; developing national guidelines for the recognition, treatment of patients with HAE; maintaining the registry, patient education, supply patients with info-card and C1-INH concentrate, follow-up of patients, telephone 'hot-line' service, under- and postgraduate education as well as pursues scientific activities. Established in 1996, the Hungarian HAE Patients' Association a foundation to support HAE patients; and a Hungarian HAE website. Hungarian HAE Working Group is the main organizer of the European C1-INH Deficiency Workshops to be held at two-year intervals from 1999.

Original languageEnglish
Pages (from-to)229-233
Number of pages5
JournalTransfusion and Apheresis Science
Volume29
Issue number3
DOIs
Publication statusPublished - Dec 2003

    Fingerprint

Keywords

  • C1-esterase inhibitor
  • Hereditary angiooedema
  • Management of HAE

ASJC Scopus subject areas

  • Hematology

Cite this