Ten years EULAR Scleroderma Research and Trials (EUSTAR): What has been achieved?

Ulf Müller-Ladner, Alan Tyndall, L. Czirják, Christopher Denton, Marco Matucci-Cerinic

Research output: Contribution to journalArticle

9 Citations (Scopus)

Abstract

Ten years ago a group of researchers interested in and dedicated to the field of systemic sclerosis started a unique experiment called European League Against Rheumatism (EULAR) Scleroderma Trials And Research (EUSTAR) that was designed to establish a large-scale database in a rare disease to facilitate the exact characterisation of this debilitating disease, spread the knowledge even beyond the borders of Europe and stimulate innovative research targeting the major problems of the affected patients. This EUSTAR experiment, with all its facets, including the creation of a large-scale database, the initiation of more than 40 investigator-driven clinical and basic science projects, the teaching of more than 400 young clinicians in the field of systemic sclerosis and the realisation of multicenter EU grants, which were all facilitated by an initial research grant from EULAR, is outlined and commented upon by the members of the steering committee in this viewpoint article on behalf of the now more than 150 contributing centres and the international systemic sclerosis patients' association, the Federation of European Scleroderma Associations.

Original languageEnglish
Pages (from-to)324-327
Number of pages4
JournalAnnals of the Rheumatic Diseases
Volume73
Issue number2
DOIs
Publication statusPublished - Feb 2014

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Rheumatic Diseases
Systemic Scleroderma
Organized Financing
Research
Research Personnel
Databases
Committee Membership
Rare Diseases
Teaching
Experiments

ASJC Scopus subject areas

  • Rheumatology
  • Immunology
  • Biochemistry, Genetics and Molecular Biology(all)
  • Immunology and Allergy

Cite this

Ten years EULAR Scleroderma Research and Trials (EUSTAR) : What has been achieved? / Müller-Ladner, Ulf; Tyndall, Alan; Czirják, L.; Denton, Christopher; Matucci-Cerinic, Marco.

In: Annals of the Rheumatic Diseases, Vol. 73, No. 2, 02.2014, p. 324-327.

Research output: Contribution to journalArticle

Müller-Ladner, Ulf ; Tyndall, Alan ; Czirják, L. ; Denton, Christopher ; Matucci-Cerinic, Marco. / Ten years EULAR Scleroderma Research and Trials (EUSTAR) : What has been achieved?. In: Annals of the Rheumatic Diseases. 2014 ; Vol. 73, No. 2. pp. 324-327.
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