Epilepsziával élo felnottek felmérése Magyarországon

Életminoség és költségek

Translated title of the contribution: Survey of adults with epilepsy in Hungary: Health related quality of life and costs

Márta Péntek, D. Bereczki, L. Gulácsi, Boglárka Mikudina, Z. Arányi, Vera Juhos, Petra Baji, Valentin Brodszky

Research output: Contribution to journalArticle

11 Citations (Scopus)

Abstract

Background and purpose - Disease burden of epilepsy in Hungary is underexplored. The aim of our study was to assess the quality of life and costs of adults with epilepsy. Methods - Cross-sectional questionnaire survey was performed in two hospital based outpatient neurology centres involving consecutive patients with epilepsy. Demography, clinical characteristics, health status (EQ-5D) and health care utilisation in the past 12 months were surveyed. Cost calculation was performed from the societal perspective. Results - Altogether 100 patients (women 58%) were involved, their mean age was 37.6 (SD= 12.5) years. Disease duration was 15.0 (SD= 12.1) years on average and 22 (22%) patients were disability pensioners. The EQ-5D score was mean 0.83 (SD=0.24) which is significantly lower than the age-matched population norm (p=0.017). Pain/discomfort and anxiety/depression are the most problematic health dimensions. The annual cost per patient was mean 2421 (SD=3249) Euros (679 397 SD=911 783 HUF; conversion: 1 Euro=280.6 HUF), distribution between direct medical, direct non-medical and indirect costs was 33%, 18% or 49%. Patients with seizure in the past 12 months have higher cost on avergare than the asymptomatic subsample (3119 vs. 988 Euros/patient/year; 935 481 vs. 277 209 HUF/patient/year). Conclusion - Adults with epilepsy have significantly worse health status by the EQ-5D than the gender and age matched Hungarian general population. Disease related costs are significant especially in cases with seizure, productivity loss related costs are dominant. Our study provides basic data for clinical and sustainable health care financing decisions.

Original languageHungarian
Pages (from-to)251-261
Number of pages11
JournalIdeggyógyászati szemle
Volume66
Issue number7-8
Publication statusPublished - Jul 30 2013

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Hungary
Epilepsy
Quality of Life
Costs and Cost Analysis
Health Status
Seizures
Patient Acceptance of Health Care
Healthcare Financing
Cost of Illness
Neurology
Surveys and Questionnaires
Population
Outpatients
Anxiety
Cross-Sectional Studies
Demography
Depression
Delivery of Health Care
Pain
Health

ASJC Scopus subject areas

  • Clinical Neurology
  • Neurology

Cite this

Epilepsziával élo felnottek felmérése Magyarországon : Életminoség és költségek. / Péntek, Márta; Bereczki, D.; Gulácsi, L.; Mikudina, Boglárka; Arányi, Z.; Juhos, Vera; Baji, Petra; Brodszky, Valentin.

In: Ideggyógyászati szemle, Vol. 66, No. 7-8, 30.07.2013, p. 251-261.

Research output: Contribution to journalArticle

Péntek, Márta ; Bereczki, D. ; Gulácsi, L. ; Mikudina, Boglárka ; Arányi, Z. ; Juhos, Vera ; Baji, Petra ; Brodszky, Valentin. / Epilepsziával élo felnottek felmérése Magyarországon : Életminoség és költségek. In: Ideggyógyászati szemle. 2013 ; Vol. 66, No. 7-8. pp. 251-261.
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abstract = "Background and purpose - Disease burden of epilepsy in Hungary is underexplored. The aim of our study was to assess the quality of life and costs of adults with epilepsy. Methods - Cross-sectional questionnaire survey was performed in two hospital based outpatient neurology centres involving consecutive patients with epilepsy. Demography, clinical characteristics, health status (EQ-5D) and health care utilisation in the past 12 months were surveyed. Cost calculation was performed from the societal perspective. Results - Altogether 100 patients (women 58{\%}) were involved, their mean age was 37.6 (SD= 12.5) years. Disease duration was 15.0 (SD= 12.1) years on average and 22 (22{\%}) patients were disability pensioners. The EQ-5D score was mean 0.83 (SD=0.24) which is significantly lower than the age-matched population norm (p=0.017). Pain/discomfort and anxiety/depression are the most problematic health dimensions. The annual cost per patient was mean 2421 (SD=3249) Euros (679 397 SD=911 783 HUF; conversion: 1 Euro=280.6 HUF), distribution between direct medical, direct non-medical and indirect costs was 33{\%}, 18{\%} or 49{\%}. Patients with seizure in the past 12 months have higher cost on avergare than the asymptomatic subsample (3119 vs. 988 Euros/patient/year; 935 481 vs. 277 209 HUF/patient/year). Conclusion - Adults with epilepsy have significantly worse health status by the EQ-5D than the gender and age matched Hungarian general population. Disease related costs are significant especially in cases with seizure, productivity loss related costs are dominant. Our study provides basic data for clinical and sustainable health care financing decisions.",
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