A Veleszületett Rendellenességek Országos Nyilvántartásának 50 éve és néhány fontosabb eredménye

Translated title of the contribution: Fifty years of the Hungarian congenital abnormality registry and some important results

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Abstract

The Hungarian Congenital Abnormality Registry (HCAR) was established in 1962 after the greatest tragedy of human teratology, the thalidomide-Contergan catastrophe. As far as we know HCAR was the first national-based registry in the world based on the mandatory notification of patients with different structural birth defects, i.e. congenital abnormalities (CAs) by medical doctors. The main task of the HCAR has been to determine as reliably as possible the baseline occurrence of different CAs. In addition three other secondary missions of the HCAR were defined: 1) to detect temporal and/or spatial increases ("clusters") of CA and to evaluate the permanent changing trends of CAs; 2) to help plan medical and social services for cases with different CA; and 3) to estimate the public health importance of different CAs so that resources can be properly allocated. Here some important results of HCAR between 1962 and 2011, i.e. during 50 years are reported.

Original languageHungarian
Pages (from-to)9-15
Number of pages7
JournalLege Artis Medicinae
Volume23
Issue number1
Publication statusPublished - Mar 20 2013

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ASJC Scopus subject areas

  • Medicine(all)

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