Clinical and genetic registries in psoriatic disease

Dafna D. Gladman, Proton Rahman, Gerald G. Krueger, Philip J. Mease, Abrar A. Qureshi, Jan P. Dutz, Ulla Lindqvist, Sueli Carneiro, Philip S. Helliwell, I. Újfalussy, Alice B. Gottlieb, Frank Behrens, Mona Ståhle

Research output: Contribution to journalArticle

14 Citations (Scopus)

Abstract

Clinical and genetic registries are an important tool in studying psoriasis and psoriatic arthritis (PsA). They assist in delineating disease features and are crucial in defining phenotype and identifying genetic and other markers of disease expression. At the 2007 Annual Meeting of the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA), members of the clinical registries and genetics committees described several ongoing registries, including their construction, protocols, and some results from their analyses. In breakout groups, members discussed data issues, including identification of core datasets, ownership, and how to share data; and ethical issues and possible sources of funding for registries. Proceedings of these meetings are summarized.

Original languageEnglish
Pages (from-to)1458-1463
Number of pages6
JournalJournal of Rheumatology
Volume35
Issue number7
Publication statusPublished - Jul 2008

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Registries
Psoriatic Arthritis
Psoriasis
Group Processes
Ownership
Genetic Markers
Ethics
Phenotype
Research

Keywords

  • Clinical registries
  • Genetic studies
  • Psoriasis
  • Psoriatic arthritis

ASJC Scopus subject areas

  • Rheumatology
  • Immunology

Cite this

Gladman, D. D., Rahman, P., Krueger, G. G., Mease, P. J., Qureshi, A. A., Dutz, J. P., ... Ståhle, M. (2008). Clinical and genetic registries in psoriatic disease. Journal of Rheumatology, 35(7), 1458-1463.

Clinical and genetic registries in psoriatic disease. / Gladman, Dafna D.; Rahman, Proton; Krueger, Gerald G.; Mease, Philip J.; Qureshi, Abrar A.; Dutz, Jan P.; Lindqvist, Ulla; Carneiro, Sueli; Helliwell, Philip S.; Újfalussy, I.; Gottlieb, Alice B.; Behrens, Frank; Ståhle, Mona.

In: Journal of Rheumatology, Vol. 35, No. 7, 07.2008, p. 1458-1463.

Research output: Contribution to journalArticle

Gladman, DD, Rahman, P, Krueger, GG, Mease, PJ, Qureshi, AA, Dutz, JP, Lindqvist, U, Carneiro, S, Helliwell, PS, Újfalussy, I, Gottlieb, AB, Behrens, F & Ståhle, M 2008, 'Clinical and genetic registries in psoriatic disease', Journal of Rheumatology, vol. 35, no. 7, pp. 1458-1463.
Gladman DD, Rahman P, Krueger GG, Mease PJ, Qureshi AA, Dutz JP et al. Clinical and genetic registries in psoriatic disease. Journal of Rheumatology. 2008 Jul;35(7):1458-1463.
Gladman, Dafna D. ; Rahman, Proton ; Krueger, Gerald G. ; Mease, Philip J. ; Qureshi, Abrar A. ; Dutz, Jan P. ; Lindqvist, Ulla ; Carneiro, Sueli ; Helliwell, Philip S. ; Újfalussy, I. ; Gottlieb, Alice B. ; Behrens, Frank ; Ståhle, Mona. / Clinical and genetic registries in psoriatic disease. In: Journal of Rheumatology. 2008 ; Vol. 35, No. 7. pp. 1458-1463.
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