Clinical and genetic registries in psoriatic disease

Dafna D. Gladman, Proton Rahman, Gerald G. Krueger, Philip J. Mease, Abrar A. Qureshi, Jan P. Dutz, Ulla Lindqvist, Sueli Carneiro, Philip S. Helliwell, Ilona Ujfalussy, Alice B. Gottlieb, Frank Behrens, Mona Ståhle

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14 Citations (Scopus)

Abstract

Clinical and genetic registries are an important tool in studying psoriasis and psoriatic arthritis (PsA). They assist in delineating disease features and are crucial in defining phenotype and identifying genetic and other markers of disease expression. At the 2007 Annual Meeting of the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA), members of the clinical registries and genetics committees described several ongoing registries, including their construction, protocols, and some results from their analyses. In breakout groups, members discussed data issues, including identification of core datasets, ownership, and how to share data; and ethical issues and possible sources of funding for registries. Proceedings of these meetings are summarized.

Original languageEnglish
Pages (from-to)1458-1463
Number of pages6
JournalJournal of Rheumatology
Volume35
Issue number7
Publication statusPublished - Jul 1 2008

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Keywords

  • Clinical registries
  • Genetic studies
  • Psoriasis
  • Psoriatic arthritis

ASJC Scopus subject areas

  • Rheumatology
  • Immunology and Allergy
  • Immunology

Cite this

Gladman, D. D., Rahman, P., Krueger, G. G., Mease, P. J., Qureshi, A. A., Dutz, J. P., Lindqvist, U., Carneiro, S., Helliwell, P. S., Ujfalussy, I., Gottlieb, A. B., Behrens, F., & Ståhle, M. (2008). Clinical and genetic registries in psoriatic disease. Journal of Rheumatology, 35(7), 1458-1463.