Acceptability of less than perfect health states in rheumatoid arthritis: The patients' perspective

Márta Péntek, Bernadette Rojkovich, L. Czirják, P. Géher, Péter Keszthelyi, Attila Kovács, László Kovács, Zita Szabó, Z. Szekanecz, László Tamási, Ágnes Edit Tóth, I. Újfalussy, Noémi Vártokné Hevér, Bálint Strbák, Petra Baji, Valentin Brodszky, L. Gulácsi

Research output: Contribution to journalArticle

6 Citations (Scopus)

Abstract

Some health problems are considered by many individuals as a 'normal' part of ageing. Our aim was to investigate whether patients with rheumatoid arthritis (RA) consider different types and levels of health losses as acceptable beyond a certain age. A multicenter cross-sectional survey was performed involving RA patients at the initiation of the first biological therapy. The EQ-5D and the Health Assessment Questionnaire Disability Index (HAQDI) questionnaires were used to describe domain-specific health states. Patients were asked to indicate for each domain from what age and onward (between ages 30 and 80 years in 10 year intervals) they considered moderate and severe problems acceptable or alternatively never acceptable. Seventy-seven RA patients (females 86%, mean age 50.3, disease duration 9.1 years) completed the questionnaire. Disease activity (DAS28), EQ-5D and HAQ-DI scores were mean 6.00 (SD 0.85), 0.35 (SD 0.36), 1.48 (SD 0.66), respectively. The majority of the patients considered age 70 and beyond as acceptable to have some health problems (EQ-5D: self-care 42%, pain/discomfort 34%, mobility 33%, usual activities 33%, anxiety/depression 27%), whilst at ages 30 and 40 as not acceptable. Severe health problems were mostly (57-69%) considered never acceptable, except the 'Usual activities' domain (acceptable from age 80 by 50.6%). The great majority of the patients (77-96%) were younger than what they indicated as the acceptability age limit. Similar results were found for the HAQ-DI. This small experimental study suggests that RA patients consider some health problems acceptable. This acceptability is age related and varies by health areas. Further larger studies are needed to explore explanatory variables and to compare with other diseases. Owing to the impact acceptability might have on RA patients' self-evaluation of current health state and decision-making, the topic deserves methodological improvement and further investigation.

Original languageEnglish
JournalEuropean Journal of Health Economics
Volume15
Issue numberSUPPL. 1
DOIs
Publication statusPublished - 2014

Fingerprint

Rheumatoid Arthritis
Health
ametantrone
Diagnostic Self Evaluation
Biological Therapy
Acceptability
Arthritis
Health state
Self Care
Health Status
Decision Making
Anxiety
Cross-Sectional Studies
Depression
Pain
Surveys and Questionnaires
Questionnaire

Keywords

  • Acceptability
  • EQ-5D
  • HAQ-DI
  • Health status
  • Rheumatoid arthritis

ASJC Scopus subject areas

  • Health Policy
  • Economics, Econometrics and Finance (miscellaneous)
  • Medicine(all)

Cite this

Acceptability of less than perfect health states in rheumatoid arthritis : The patients' perspective. / Péntek, Márta; Rojkovich, Bernadette; Czirják, L.; Géher, P.; Keszthelyi, Péter; Kovács, Attila; Kovács, László; Szabó, Zita; Szekanecz, Z.; Tamási, László; Tóth, Ágnes Edit; Újfalussy, I.; Hevér, Noémi Vártokné; Strbák, Bálint; Baji, Petra; Brodszky, Valentin; Gulácsi, L.

In: European Journal of Health Economics, Vol. 15, No. SUPPL. 1, 2014.

Research output: Contribution to journalArticle

Péntek, M, Rojkovich, B, Czirják, L, Géher, P, Keszthelyi, P, Kovács, A, Kovács, L, Szabó, Z, Szekanecz, Z, Tamási, L, Tóth, ÁE, Újfalussy, I, Hevér, NV, Strbák, B, Baji, P, Brodszky, V & Gulácsi, L 2014, 'Acceptability of less than perfect health states in rheumatoid arthritis: The patients' perspective', European Journal of Health Economics, vol. 15, no. SUPPL. 1. https://doi.org/10.1007/s10198-014-0596-2
Péntek, Márta ; Rojkovich, Bernadette ; Czirják, L. ; Géher, P. ; Keszthelyi, Péter ; Kovács, Attila ; Kovács, László ; Szabó, Zita ; Szekanecz, Z. ; Tamási, László ; Tóth, Ágnes Edit ; Újfalussy, I. ; Hevér, Noémi Vártokné ; Strbák, Bálint ; Baji, Petra ; Brodszky, Valentin ; Gulácsi, L. / Acceptability of less than perfect health states in rheumatoid arthritis : The patients' perspective. In: European Journal of Health Economics. 2014 ; Vol. 15, No. SUPPL. 1.
@article{b9ae3c5c2cfb42699c9172ffdb5cb060,
title = "Acceptability of less than perfect health states in rheumatoid arthritis: The patients' perspective",
abstract = "Some health problems are considered by many individuals as a 'normal' part of ageing. Our aim was to investigate whether patients with rheumatoid arthritis (RA) consider different types and levels of health losses as acceptable beyond a certain age. A multicenter cross-sectional survey was performed involving RA patients at the initiation of the first biological therapy. The EQ-5D and the Health Assessment Questionnaire Disability Index (HAQDI) questionnaires were used to describe domain-specific health states. Patients were asked to indicate for each domain from what age and onward (between ages 30 and 80 years in 10 year intervals) they considered moderate and severe problems acceptable or alternatively never acceptable. Seventy-seven RA patients (females 86{\%}, mean age 50.3, disease duration 9.1 years) completed the questionnaire. Disease activity (DAS28), EQ-5D and HAQ-DI scores were mean 6.00 (SD 0.85), 0.35 (SD 0.36), 1.48 (SD 0.66), respectively. The majority of the patients considered age 70 and beyond as acceptable to have some health problems (EQ-5D: self-care 42{\%}, pain/discomfort 34{\%}, mobility 33{\%}, usual activities 33{\%}, anxiety/depression 27{\%}), whilst at ages 30 and 40 as not acceptable. Severe health problems were mostly (57-69{\%}) considered never acceptable, except the 'Usual activities' domain (acceptable from age 80 by 50.6{\%}). The great majority of the patients (77-96{\%}) were younger than what they indicated as the acceptability age limit. Similar results were found for the HAQ-DI. This small experimental study suggests that RA patients consider some health problems acceptable. This acceptability is age related and varies by health areas. Further larger studies are needed to explore explanatory variables and to compare with other diseases. Owing to the impact acceptability might have on RA patients' self-evaluation of current health state and decision-making, the topic deserves methodological improvement and further investigation.",
keywords = "Acceptability, EQ-5D, HAQ-DI, Health status, Rheumatoid arthritis",
author = "M{\'a}rta P{\'e}ntek and Bernadette Rojkovich and L. Czirj{\'a}k and P. G{\'e}her and P{\'e}ter Keszthelyi and Attila Kov{\'a}cs and L{\'a}szl{\'o} Kov{\'a}cs and Zita Szab{\'o} and Z. Szekanecz and L{\'a}szl{\'o} Tam{\'a}si and T{\'o}th, {{\'A}gnes Edit} and I. {\'U}jfalussy and Hev{\'e}r, {No{\'e}mi V{\'a}rtokn{\'e}} and B{\'a}lint Strb{\'a}k and Petra Baji and Valentin Brodszky and L. Gul{\'a}csi",
year = "2014",
doi = "10.1007/s10198-014-0596-2",
language = "English",
volume = "15",
journal = "European Journal of Health Economics",
issn = "1618-7598",
publisher = "Springer Verlag",
number = "SUPPL. 1",

}

TY - JOUR

T1 - Acceptability of less than perfect health states in rheumatoid arthritis

T2 - The patients' perspective

AU - Péntek, Márta

AU - Rojkovich, Bernadette

AU - Czirják, L.

AU - Géher, P.

AU - Keszthelyi, Péter

AU - Kovács, Attila

AU - Kovács, László

AU - Szabó, Zita

AU - Szekanecz, Z.

AU - Tamási, László

AU - Tóth, Ágnes Edit

AU - Újfalussy, I.

AU - Hevér, Noémi Vártokné

AU - Strbák, Bálint

AU - Baji, Petra

AU - Brodszky, Valentin

AU - Gulácsi, L.

PY - 2014

Y1 - 2014

N2 - Some health problems are considered by many individuals as a 'normal' part of ageing. Our aim was to investigate whether patients with rheumatoid arthritis (RA) consider different types and levels of health losses as acceptable beyond a certain age. A multicenter cross-sectional survey was performed involving RA patients at the initiation of the first biological therapy. The EQ-5D and the Health Assessment Questionnaire Disability Index (HAQDI) questionnaires were used to describe domain-specific health states. Patients were asked to indicate for each domain from what age and onward (between ages 30 and 80 years in 10 year intervals) they considered moderate and severe problems acceptable or alternatively never acceptable. Seventy-seven RA patients (females 86%, mean age 50.3, disease duration 9.1 years) completed the questionnaire. Disease activity (DAS28), EQ-5D and HAQ-DI scores were mean 6.00 (SD 0.85), 0.35 (SD 0.36), 1.48 (SD 0.66), respectively. The majority of the patients considered age 70 and beyond as acceptable to have some health problems (EQ-5D: self-care 42%, pain/discomfort 34%, mobility 33%, usual activities 33%, anxiety/depression 27%), whilst at ages 30 and 40 as not acceptable. Severe health problems were mostly (57-69%) considered never acceptable, except the 'Usual activities' domain (acceptable from age 80 by 50.6%). The great majority of the patients (77-96%) were younger than what they indicated as the acceptability age limit. Similar results were found for the HAQ-DI. This small experimental study suggests that RA patients consider some health problems acceptable. This acceptability is age related and varies by health areas. Further larger studies are needed to explore explanatory variables and to compare with other diseases. Owing to the impact acceptability might have on RA patients' self-evaluation of current health state and decision-making, the topic deserves methodological improvement and further investigation.

AB - Some health problems are considered by many individuals as a 'normal' part of ageing. Our aim was to investigate whether patients with rheumatoid arthritis (RA) consider different types and levels of health losses as acceptable beyond a certain age. A multicenter cross-sectional survey was performed involving RA patients at the initiation of the first biological therapy. The EQ-5D and the Health Assessment Questionnaire Disability Index (HAQDI) questionnaires were used to describe domain-specific health states. Patients were asked to indicate for each domain from what age and onward (between ages 30 and 80 years in 10 year intervals) they considered moderate and severe problems acceptable or alternatively never acceptable. Seventy-seven RA patients (females 86%, mean age 50.3, disease duration 9.1 years) completed the questionnaire. Disease activity (DAS28), EQ-5D and HAQ-DI scores were mean 6.00 (SD 0.85), 0.35 (SD 0.36), 1.48 (SD 0.66), respectively. The majority of the patients considered age 70 and beyond as acceptable to have some health problems (EQ-5D: self-care 42%, pain/discomfort 34%, mobility 33%, usual activities 33%, anxiety/depression 27%), whilst at ages 30 and 40 as not acceptable. Severe health problems were mostly (57-69%) considered never acceptable, except the 'Usual activities' domain (acceptable from age 80 by 50.6%). The great majority of the patients (77-96%) were younger than what they indicated as the acceptability age limit. Similar results were found for the HAQ-DI. This small experimental study suggests that RA patients consider some health problems acceptable. This acceptability is age related and varies by health areas. Further larger studies are needed to explore explanatory variables and to compare with other diseases. Owing to the impact acceptability might have on RA patients' self-evaluation of current health state and decision-making, the topic deserves methodological improvement and further investigation.

KW - Acceptability

KW - EQ-5D

KW - HAQ-DI

KW - Health status

KW - Rheumatoid arthritis

UR - http://www.scopus.com/inward/record.url?scp=84905679149&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84905679149&partnerID=8YFLogxK

U2 - 10.1007/s10198-014-0596-2

DO - 10.1007/s10198-014-0596-2

M3 - Article

C2 - 24832838

AN - SCOPUS:84905679149

VL - 15

JO - European Journal of Health Economics

JF - European Journal of Health Economics

SN - 1618-7598

IS - SUPPL. 1

ER -