A cross-sectional survey on the transitional care of adolescents with inflammatory bowel disease in Hungary

Adrienn Erős, G. Verès, András Tárnok, Dóra Dohos, Caroline Otto, Zsolt Szakács, Péter Hegyi, Áron Vincze, Patrícia Sarlós

Research output: Contribution to journalArticle

Abstract

Purpose: Since little is known about transitional care practices of adolescents with inflammatory bowel diseases (IBD) in Central-Eastern Europe, we aimed to investigate the currently applied transition practices in Hungary. Design and methods: A nationwide, multicentre survey was conducted with the invitation of 41 pediatric and adult IBD centres in February 2019.We developed a 34-item questionnaire, which included single- and multiple-choice questions related to the current clinical practice of IBD transition. Results: The overall response rate was 31.7% (13/41); answers came predominantly from tertiary centres. Only 15.4% of the respondent centres followed international IBD guidelines. The majority of the IBD centres provided transition support; however, responses revealed a marked heterogeneity of these services. Joint visits were held only in 54% of the clinics. Gastroenterologists and next of kin are not provided education regarding transition across most centres (85 and 92%). Although adolescents received age-specific education, transition readiness was not measured. More IBD nurses and dietitians were employed in adult centres than in pediatric ones. Conclusions: The current survey revealed critical gaps in the Hungarian IBD transition practices. As the beneficial effects of structured IBD transition programmes are recognized in Hungary, there is a growing need for the introduction of new, more effective transition practices. Practice implications: Our results can serve as a basis for planning more effective transition strategies.

Original languageEnglish
JournalJournal of Pediatric Nursing
DOIs
Publication statusAccepted/In press - 2020

Keywords

  • Crohn's disease
  • Inflammatory bowel diseases
  • Structured transition
  • Transitional care
  • Ulcerative colitis

ASJC Scopus subject areas

  • Pediatrics

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